A sort of homecoming....
Wyatt was discharged from the hospital this past Saturday! So, finally, our first homecoming! He is doing well and feeling happy to be out of the hospital. He is still getting some medication through his central line which means Steve and I have become temporary nurses. So far, it's going well but it's certainly more than we ever wanted to know about nursing. We are both a little anxious about it as a mistake could be costly.
Our big task now is persuading Wyatt to eat. He is not very interested but we keep trying. Wyatt has never had much of an appetite which we now know is a result of his Fanconi Anemia. For those of you who have been around during a mealtime with us, you know that we go to great lengths to persuade him to eat...sometimes dancing, cheerleading routines, sometimes parades, sometimes eating contests,etc. We have been reduced to some really silly levels.
Wyatt is still on a very strong antibiotic for another week. After he completes it, we will know if his most recent infection has cleared. Unfortunately, the doctors suspect that it is a resistant bacteria that might require them to remove his central line. We really hope that will not be the case. So, we keep our fingers crossed that this infection will be gone for good.
There is LOTS of snow here. Wyatt really enjoys the drives to the clinic. He likes seeing all the snow. I guess you appreciate everything when you have been inside for 40 days! Today, he found a frozen spider on the balcony...very exciting! Especially for someone who likes bugs as much as Wyatt (just like his Dad!)





