Day 93
Wyatt had his 100 day biopsy today (a little early). They also took out his central line. It looks like we are heading back to VA Beach this weekend! Wyatt still has a lot of restrictions and will be cared for closely by the clinic at home. We are all very excited to get home but we are still anxious about Wyatt's recovery. His risk for infection is a lot less now that his line as been removed; however, his immune system is still very weak. And we will need to remain very cautious about exposing him to germs and bacteria. Still living life on the edge....but for now, we are feeling very happy and hopeful.
Wyatt will be scheduled for another biopsy at 6 month post transplant in May. This procedure will be done here in Minnesota. If all continues to go well and things look good at the 6 month biopsy, wyatt will be able to live life with a few less restrictions. And, we will be able to experience Minnesota in the spring!
We are going home just in time for Wyatt's cousin Cameron's 7th birthday party. Cameron is doing something very special for Wyatt, he is having a fundraiser birthday party for Fanconi Anemia. Cameron is asking his friends to make a donation to The Fanconi Anemia Research Fund instead of bringing him gifts. His birthday party is going to be held at The Bounce House in Virginia Beach. The Bounce House has generously offered to join the fundraising effort by opening all day on Feb. 23rd and donating 30% of the proceeds to FA. The local media has become interested in Cameron's unique and generous birthday parties (he has had fundraiser birthday parties for the past 2 years) and the party is getting lots of coverage. Here is the link to the first of several stories:
February 14th is National Donor Day which focuses on 5 points of life - organs, tissues, marrow, platelets, and blood. Wyatt has received over 20 blood and platelet transfusions so far! There are two scheduled blood drives in honor of Wyatt in the month of February. One is being held by his preschool, All Saint's Day School. And one is being held by SATURN of Virginia Beach. Thank you All Saint's and SATURN! We encourage everyone reading this to consider getting out and donating blood as often as possible. Only 5% of eligible Americans actually donate blood. And we are also hopeful that Wyatt's story will bring awareness to the importance of registering as a bone marrow donor. It truly is a gift of life.
Here is the information for the fundraiser and blood drives being held next month for Wyatt:
Come Bounce for Fanconi Anemia!
The Bounce House, 553 S. Birdneck Road, Virginia Beach, VA
Saturday, Feb. 23rd, 10:00 am- 6:00 pm
SATURN of Virginia Beach Blood Drive
1808 Laskin Road, Virginia Beach, VA
Thursday, Feb. 14th, 10:00 am-3:00 pm
All Saint's Day School Blood Drive
1968 Woodside Lane, Virginia Beach, VA
Tuesday, Feb. 25th, 9:00 am-1:30 pm





