Day 100

By Jennifer on February 7, 2008 9:56 PM | Permalink | TrackBacks (0)

Today is actually Day 100 for Wyatt. Day 100 is an important milestone for BMT patients although Wyatt is a little ahead of the game right now because he had his biopsy early (exactly a week ago). We still do not have the results from that biopsy but they should come in any day now. We are anxiously waiting for that call from Minnesota. Even though the results were positive at his 60 Day biopsy, we still feel nervous and anxious. There is a lot of waiting in this process and I have grown to really hate it. I suppose those feelings of anxiety will never go away. From what we understand, complications can occur at any time even years out. Those thoughts weigh heavily on your mind some days especially when you are waiting for test results. I am not sure if we will ever truly reach a point when we can exhale. Sometimes I feel like we are always going to be looking over our shoulders and hoping that whatever is back there doesn't catch up with us. I hope that Steve and I can somehow find a way keep Wyatt above this emotional roller coaster so that he can go on living like a normal 3 year old...and 4 year old....and 5 year old. He deserves some peace and happiness!

As I have written before, Wyatt has been so patience and understanding through all of this craziness. I think he might have accepted things much earlier than we did. But he did reach a breaking point during his last procedure. He was put under for his last biopsy and central line removal and when he woke up, he was not very happy about things. We had one final thing to do before we were released for home, a chest x-ray. This would normally not be a big deal for Wyatt - he would call it "a piece of clake" (he adds a lot of L's to his words right now). But this was not a normal day and Wyatt had decided that he was fed up with this nonsense. So, he flat out refused to do the x-ray; turned his back on us, put his nose in the air and said, "NO!" Unfortunately, 'no' was not an option and we had to hold him down for the x-ray. As soon as it was finished, he sat up and gave the technician a big ole raspberry...just inches from her face. Of course, we had to reprimand him but inside we were thinking, you go little buddy! Let's just give this whole thing a big, fat raspberry!

Coincidentally, today is also Owen's first birthday. Our own little angel (and sometimes devil!). We are so lucky that Owen came into our lives when he did. He has been such a fun and sweet distraction from all of the stress. And he has truly been a miracle for his brother on so many different levels!




Day 100 By Jennifer on February 7, 2008 9:56 PM \| Permalink \| TrackBacks (0) Today is actually Day 100 for Wyatt. Day 100 is an important milestone for BMT patients although Wyatt is a little ahead of the game right now because he had his biopsy early (exactly a week ago). We still do not have the results from that biopsy but they should come in any day now. We are anxiously waiting for that call from Minnesota. Even though the results were positive at his 60 Day biopsy, we still feel nervous and anxious. There is a lot of waiting in this process and I have grown to really hate it. I suppose those feelings of anxiety will never go away. From what we understand, complications can occur at any time even years out. Those thoughts weigh heavily on your mind some days especially when you are waiting for test results. I am not sure if we will ever truly reach a point when we can exhale. Sometimes I feel like we are always going to be looking over our shoulders and hoping that whatever is back there doesn't catch up with us. I hope that Steve and I can somehow find a way keep Wyatt above this emotional roller coaster so that he can go on living like a normal 3 year old...and 4 year old....and 5 year old. He deserves some peace and happiness! As I have written before, Wyatt has been so patience and understanding through all of this craziness. I think he might have accepted things much earlier than we did. But he did reach a breaking point during his last procedure. He was put under for his last biopsy and central line removal and when he woke up, he was not very happy about things. We had one final thing to do before we were released for home, a chest x-ray. This would normally not be a big deal for Wyatt - he would call it "a piece of clake" (he adds a lot of L's to his words right now). But this was not a normal day and Wyatt had decided that he was fed up with this nonsense. So, he flat out refused to do the x-ray; turned his back on us, put his nose in the air and said, "NO!" Unfortunately, 'no' was not an option and we had to hold him down for the x-ray. As soon as it was finished, he sat up and gave the technician a big ole raspberry...just inches from her face. Of course, we had to reprimand him but inside we were thinking, you go little buddy! Let's just give this whole thing a big, fat raspberry! Coincidentally, today is also Owen's first birthday. Our own little angel (and sometimes devil!). We are so lucky that Owen came into our lives when he did. He has been such a fun and sweet distraction from all of the stress. And he has truly been a miracle for his brother on so many different levels!

©2007 Jen, Steve, Wyatt, and Owen