June 2009 Archives

So the fundraiser in PA was great!  The weather was perfect.  There was a good turnout of people.  The farm was beautiful.  And Wyatt had a fabulous time - moon bounce, snake spotting in the pond, dog show, gym bus, snow cones, etc.  All the ingredients for a super fun day.

And, as always, Steve and I were humbled by the support from our family, friends and community.   Brad and Bonnie, the event organizers, are so very kind and generous.  They put so much time and energy into the fundraiser and we thank them from the bottom of our hearts.  I often worry that I do not express my gratitude enough.  It's difficult to find the right words to convey how much Steve and I appreciate the support we have received in the past two years. 

In the beginning of all this nonsense, I remember wondering if I had what it would take to get through everything...whatever the outcome might be.  And I remember hoping that I had created a life that was strong enough to endure the challenges that I was going to face.  Was my marriage strong enough?  Did I have the right people in my life?  Was I wise enough to make the decisions that would determine the outcome of my son's life?  Could I make Wyatt feel safe despite all of his pain and fear?   What I learned along the way was that I made some very good choices long before Wyatt was even born.  I picked the right partner.  I surrounded myself with amazing and caring people.  And when I wasn't brave enough; or smart enough; or strong enough - they filled in the blanks.  The people who have supported me for the past two years and beyond have always stepped in at just right time with just the right answers.   So while I have stumbled many times, I have always made it through.  I found a small poster in Minnesota that was so perfectly fitting to my situation - in the words of Christopher Robin, "Promise me you will always remember: you're braver than you believe, and stronger than you seem, and smarter than you think..."  And that is what so many of my friends and family reminded me - that I could get through this ordeal. 

Even though Wyatt is doing so well right now, the complications he will face from this disease are never far from my mind.  These fundraising efforts keep us positive.  They make us feel strong against an ugly opponent.  They give us the feeling of having some control.  And maybe most importantly, they make us feel like we haven't given up the fight.  I hope that we can always find hope.  And even if we don't win, I hope we will always feel that we fought a good fight, that we gave it everything we had.  I feel like the Rocky theme song should be playing as I type this...  :)

Thank you for reading!  And thank you for all of your kindness and support for our Wyatt!